@article{article, title  = {{Parent experiences and preferences when dysmelia is identified during the prenatal and perinatal periods: a qualitative study into family nursing care for rare diseases}},

 publisher = {{SAGE Publications}},

 url = {{https://eprints.whiterose.ac.uk/id/eprint/198919 }},

 year = {{2018}},

 month = {{5}},

 author = {{Johnson J and Johnson O and Heyhoe J and Fielder C and Dunning A}},

 doi = {{10.1177/1074840718772808}},

 volume = {{24}},

 journal = {{Journal of Family Nursing}},

 issue = {{2}},

 pages = {{271-293}},

 note = {{Accessed on 2025/12/13}}}